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Abortion
Acne & Rosacea
Acute Anxiety Disorder
Adenomyosis
Adoption and Fostering/Adopted Adults/Natural Parents
Adoption from Abroad
Agoraphobia
AIDS
- contact Children's Liver Disease Foundation under Liver
Alexander Disease
Alpers Disease
Alpha 1 - Antitrypsin Deficiency
- contact Limbless Association and BLESMA under Disability
Amyotrophic Lateral Sclerosis
- contact Anaphylaxis Campaign under Allergy
Anopthalmia
Armed Forces (serving and ex)
Arteriovenous Malformation
- contact National Autistic Society under Autism
- contact British Lung Foundation under Lung
Auditory Hallucinations
- contact Marfan Association under Marfan
- contact Manic Depression Fellowship under Depression
Birthmarks
Bisexual, Lesbian and Gay
- contact Bone Dysplasia Group c/o Child Growth Foundation under Growth
Bonneville-Ulrich Syndrome
Brachial Plexus Paralysis
Brachycephaly
Breughal Syndrome
Brissaud Syndrome
Broad Thumb/Great Toe Syndrome
Bullseye Dystrophy
Butterfly Dystrophy
Canavan Disease
for facial
disfigurement caused by facial cancer see Let's Face It under Disfigurement
Carpenter Syndrome
Cavernous Haemangioma
- contact Ataxia Group under Ataxia
Cerebellar Giantism
- contact Sotos Syndrome Support Group c/o Child Growth Foundation under Growth.
Cerebroside Lipidosis
- contact Gauchers Association under Gauchers.
Cervical Smears
Chediak-Higashi Syndrome
Childbirth
Childlessness
Children in Care
- contact Family Rights Group under Family.
Choroideraemia
- contact British Retinitis Pigmentosa Society under Retinitis.
Christmas Disease
Chromosome 4
Chromosome 5
- contact Cri du Chat Syndrome Support Group under Chri
du Chat.
Chromosome 21 Trisomy
Chrondroectodermal Dysplasia
Chronic Degenerative Chorea
Chronic Fatigue Syndrome
Chronic Mucotaneous Candidiasis
Chronic Obstructive Airways Disease
- contact British Lung Foundation under Lung.
Chronic Prostatitis
Cicatricial Pemphigoid
Cloacal Exstrophy
Cloverleaf Syndrome
- contact National Association for Colitis and Crohn's Disease under Crohn's Disease
Coloboma
- contact Bowel
Cancer UK under Cancer
- contact Colostomy Association under Stoma
Combined Immune Deficiency Disease
Common Variable Immunodeficiency Disease
Cone Dysfunction
Congenital Adrenal Hyperplasia
Congenital Aplastic Anaemia
Congenital Aregenerative Anaemia
Congenital Hypoplastic Anaemia
Congenital Neutropenia
- COMA, Tel 01392 460 618 (after 6pm)
Congenital Pancreatic Insufficiency
Congenital Rubella Damage
Congenital Thomsen's Myotonia
Coprolalia Syndrome
Cori Syndrome
Corpus Callosum Absence
Creutzfeldt-Jakob Disease
Crouzon Syndrome
- contact Headlines (Craniofacial Support) under Craniofacial.
Cutis Hyperelasticum
Cystic Encephalomalacia
Cystic Fibrosis
Dandy-Walker Syndrome
Darier's Disease
Deafness
Debt
Deep Vein Thrombosis
De Lange Syndrome
Dementia
Dental Anxiety
Dermatitis Herpetiformis
Dermatomyositis/Polymyositis/Inclusion Body Myositis
DES Exposure
Devic's Disease
Di George Syndrome
Diabetes
Diabetes Insipidus
Diarrhoea
Diaphyseal Aclasis
Diastrophic Dysplasia
- contact Restricted Growth Association
under Growth
Diverticular Disease
Drink Driving
Duchenne Muscular Dystrophy
Dumb
Dwarfism
- contact Child Growth Foundation and Restricted Growth Association under Growth
Dysaesthetic Vulvodynia
Dyschondrosteosis
Dyskeratosis Congenita
- Dyskeratosis Congenita Society, Tel 020 7882 2205.
Dyslexia
Dysmennorhoea
Dysphasia
Ectopia Vesicae
Ectopic Pregnancy
Eczema
Edwards Syndrome
Education/Education at Home
Elderly Care
Electromagnetic Sensitivity
- Ellis-Van Creveld Foundation, Tel 01621 828 914
- Ellis-van Creveld (website for parents)
EMG Syndrome
Emphysema
Encephalitis
Encephalofacial Angiomatosis
Encephalomyelitis Myalgia
Encropresis
Endochrondromatosis
- contact Ollier Disease Self Help Group c/o CaF under Family
Enuresis
Epidermyolysis Bullosa
Epispadias
Erthrogenesis Imperfecta
Erythromelalgia
- contact Raynaud's and Scleroderma Association under Raynauds
Exomphalos
Exstrophy of the Bladder
Facial Disfigurement/Cancer
Facioauriculovertebral Syndrome
Facioscapulohumeral Syndrome
Fainting
False Memory
Familial Atherosclerosis
Familial Gout/Familial Juvenile Gout
Familial Haemorrhagic Telangiectasia
Familial Hypercholesterolaemia
Familial Hyperlipidaemia
Familial Tremor
- FAB-UK, Tel 0115 926 9634
Fatal Familial Insomnia
- contact CJD Support Network under CJD.
Feet (odd size/one foot)
- Sole Mates, Tel 020 8524 2423
Female to Male Transgender
Feminising Testes Syndrome
Fetal Anti-Convulsant Syndrome
Fibroids
Fibrosing Alveolitus
- contact British Lung Foundation under Lung
First Arch Syndrome
Foetal Alcohol Syndrome
Fostering
Fragile X
Franschetti-Klein Syndrome
Friedreich's Ataxia
- contact Ataxia UK under Ataxia
Frontotemporal Dementia
Fucosidosis
Galactosaemia
Gallstones/Gall Bladder Disease
- contact British Liver Trust under Liver
Gambling
Gastric Reflux
Gastroschisis Exomphalos Extrophies
GBS
Gender Identity
Generalised Flexion Epilepsy
Generalised Tic Syndrome
Genetic Disorders
Gerstmann-Straussler Syndrome
- contact Alzheimer's Society
under Alzheimer's
- also contact CJD Support Network under CJD.
Giant Cell Arteritis
Giantism
Gifted Children
Gilles de la Tourette Syndrome
Glanzmann's Thrombasthenia
Glaucoma
Glomerulonephritis
- contact British Kidney Patient Association and National Kidney Federation
under Kidney
Gluten Sensitivity
Goldberg-Maxwell Syndrome
Gout
Grandparents
Granulomatous Diseases
- contact CGD Research Trust under CGD
Greig Syndrome
Group B Streptococcal Infections
Growth Hormone Deficiency
Gulf War Syndrome
Gut Motility Disorders
- Tummy Trouble, Tel 0844 815 1415
Gynaecological Problems
Haemangioma
Haematuria
Haemochromatosis
Hairless Pseudofemale Syndrome
Hair Loss
Head Lice
Healthcare/Hospital Infections
Henloch-Schonlein Purpura
Hemifacial Microsomia
- contact Goldenhar Support Group under Goldenhar
Hemihypertrophy
Hemimegalencephaly
- contact Contact A Family under Family
Hemiplegia
Hepatitis B, Hepatitis C, Viral Hepatitis
Hereditary Angiodema
Hereditary Progressive Arthro-Opthalmopathy
Hereditary Spastic Paraparesis
Hernia/Hiatus Hernia
Herpes Simplex
Hidradenitis Suppurativa
High Blood Pressure
Hirschsprung's
HIV and AIDS
Hodgkin's Disease
- contact Lymphoma Association under Lymphoma
- also contact Leukaemia CARE under Leukaemia
Homosexuality
Hormone Replacement Therapy
Hughes Syndrome
Human Papilloma Virus
Hunter Syndrome
Hurler Syndrome
HVM
- contact Gut Motility Disorders, Tel 01737 359 873
Hydrocephalus
- contact Association for Spina Bifida and Hydrocephalus under Spina Bifida
Hyper 1ge Syndrome
Hyperchrondoplasia
- contact Restricted Growth Association under Growth
Hyperexplexia
- Hyperexplexia Contact Group, Tel 020 8578 0456
Hypergammaglobulinaemia
Hypermobility
Hypersensitive Arteritis
Hypersensitivity Vasculitis
Hypertriglyceridaemia
- contact British Heart Foundation under Heart
Hypertrophic Cardiomyopathy
- contact Cardiomyopathy Association under Heart
Hyperthyroidism/Hypothyroidism
- contact British Thyroid Foundation under Thyroid
Hypopituitarism
Hypohydrotic Ectodermal Dysplasia
Hypospadias
Hypsarrhythmia
Hysterectomy
I-Cell Disease
Ichthyosis/Lamella/Collodian
Idiopathic Erythroblastopenia
Ileostomy
- contact ia (Ileostomy & Internal Pouch Support) under Stoma
Ilizarov and External Fixators
Immotile Cilia Syndrome
Immune Thrombocytopenic Purpura
Immunisation
Impotence
Incontinentia Pigmentosia
Incontinentia Pigmentosum Achromians
Indigestion
Influenza
Inquest Problems
Insomnia
Insulin Dependent Diabetes
Intestinal Disorders
Intravenous Feeding
Irritable Bowel Syndrome
Isolation
ITO Syndrome
Ivemark Syndrome
- Ivemark Syndrome Support Group, Tel 01823 257 430
IVF/Egg Donation
Jacknife Seizures
Jackson-Weiss Syndrome
Juvenile Rheumatoid Arthritis
Juvenile Spondylitis
Kallmann's Syndrome
Kartegner Syndrome
Kearns-Sayre Syndrome
Kennedy's Disease
Keratoconus
Kidney/Kidney Cancer
Kinsbourine Syndrome
Kleeblattschaedel Syndrome
Klippel-Feil Syndrome
Klumpke's Paralysis
Kohlers Disease
Krabbe Disease
Krukenbergs Spindle and Pigment Dispersion Syndrome
Kugelberg-Welander
Laigh's Disease/Laigh's Syndrome
Landau Kleffner Syndrome
Landouzy-Dejerine Syndrome
Landry's Syndrome
Laryngeal Dystonia
Laryngectomy
Learning Difficulties/Learning Disabilities
Leber's Optic Neuropathy
Left-Handed
Legg-Calve-Perthes Syndrome
Leg Ulcers
Lejeune Syndrome
- contact Cri Du Chat Syndrome Support Group under Cri du
Chat
Lennox-Gastaut Syndrome
Leroy Disease
Lesch-Nynan Syndrome
Lewy Bodies
Lichen Sclerosus
Linear Scleroderma
- contact Raynaud's & Scleroderma Association under Raynaud's
Liver Tumours
Loin Pain
Long QT Syndrome
Lowe Syndrome
Luft Disease
Lyme Disease
Lymphangioma
Lymphoedema
Macroglossia Syndrome
Macular Disease
Madelung Wrist Deformity
Maigne Syndrome
Mal de Debarquement Syndrome
Male Pseudo-Hermaphrodism
Manic Depression
Malignant Hyperthermia
Maroteaux-Lamy-Syndrome
Marital Problems
McArdle Disease
McUne Albright Syndrome
- contact Ollier Disease Self Help Group c/o CaF under Family
Medical Accidents/Medical Incompetence
Meige's Disease
Melanoma
- contact Marcs Line under Cancer
Melnick Needles
- contact Contact A Family under Family
Membraneous Nephropathy
Meniere's Disease
Meningitis
Menkes Disease
Men's Health
Mercury Amalgam Poisoning
Microcephaly
Microscopic Arteritis
Migraine
Miller Syndrome
Miller-Dieker Syndrome
Mingie Disease
Minimal Brain Dysfunction
Miscarriage
Missing Persons
Moebius Syndrome
Monosomy X Syndrome
Morphea
- contact Raynaud's & Scleroderma Association under Raynaud's
Morris's Syndrome
Morquio Syndrome
Mosaic Down Syndrome
Mowat-Wilson Syndrome
Mutocaneous Candidiasis
Mucocutaneous Lymph Node Syndrome
- contact Kawasaki Support Group under Kawasaki
Mucopolysaccharide Diseases
Multi-Infarct Dementia
Multi Epihyseal Dysplasia
- contact Perthes Association under Perthes
Multiple Endocrine Neoplasia
Multiple Sclerosis
Multiple Sulphatase Deficiency
Multiple System Atrophy
Murder/Manslaughter
Myalgic Encephalomyelitis/Myalgic Encephalopathy (ME)
Myasthenia Gravis
Mycosis Fungoides
Myeloma
Myoclonic Encephalopathy
- contact Dancing Eye Syndrome Support Group under Dancing Eye
Naevus
Nail-Patella Syndrome
Neonatal Care
Neonatal Hypoglycaemia
Neurally Mediated Syncope
Neural Tube Disorder
Neuroblastoma
- contact Neuroblastoma Society under Cancer
Neuronal Migration Disorders
Neutropenia
Niemann-Pick Disease
Non Hodgkins Lymphoma
- contact Lymphoma Association and Lymphoma Net under Lymphoma
- also contact Leukaemia CARE under Leukaemia
Noonan Syndrome
Obesity/Weight Problems
Obsessive Behaviour/Obsessive Compulsive Disorder
Obstetric Cholestasis
- contact Obstetric Cholestasis Support & Information Service under Liver
Obstetric Disorders
Ocular Motor Apraxia
Oesophageal Atresia
Oesophageal Cancer
- contact Oesophageal Patients Association under Cancer
One Parent Families
Opsoclonus Myoclonus
- contact Dancing Eye Syndrome Support Group under Dancing Eye
Oral Cancer
- contact Restorative Dental Oncology Clinic under Cancer
Oromandibular Dystonia
Organ Donation
Organ Transplantation
Osgood Schlatter Disease
Osler-Rendu-Weber Syndrome
Osteogenesis Imperfecta
Osteopetrosis
Osteoporosis
Otto Syndrome
Ovarian Cancer
Ovarian Cists
Pachygyria
Paget's Disease
Pain
Pallid Syncope
Pancreatitis
Panhypopituitarism
Panic Attacks
Parkinson's Disease
Paruresis
Patau Syndrome
Pelizaeus-Merzbacher
Pearson Marrow Syndrome
Pelvic Dysfunction
Pelvic Inflammatory Disease
- Contact Pelvic Pain Support Network (below) and Women's Health Concern under Women's Health
Perceptuomotor Dysfunction
Period Pain
Pernicious Anaemia
Peroneal Muscular Atrophy
Pesticide Exposure
Pfeiffer Syndrome
Phenylketonuria
Pierre-Robin
Pituitary Hormone Deficiency
Poland Syndrome
Polio
Polyarteritis Nodosa
Polycystic Kidney Disease
- contact British Kidney Patient Association under Kidney
Polycystic Ovary Disease
Polydactyl Syndrome
Polymicrogyria
Polymyositis
Polyneuropathy
Polyostotic Fibrous Dysplasia
Pompe Disease
Porphyria
Port Wine Stain
Post-Abortion Trauma
Post-Natal Depression/Post-Natal Illness
Post Traumatic Stress
- contact ASSIST and StressCare under Trauma
Post-Viral Syndrome
Potters Syndrome
- Potters Syndrome Contact Group c/o Contact a Family under Family
Prader-Willi Syndrome
Preconceptual Care
Pre-Eclampsia
Premature Babies/Special Care
Premature Menopause/Premature Ovarian Failure
- contact Daisy Network under IVF
Premature Sexual Maturation
- contact PSM Group, c/o CGF under Growth
Primary Biliary Cirrhosis
- contact PBC Foundation under Liver
Primary Red Cell Anaemia
Primary Sclerosing Cholangitis
Professional Abuse (by health and care
workers)
Progressive Supranuclear Palsy
Prolactinoma
Prolapse (Uterine or Vaginal)
Prolonged Expiratory Apnoea
Prostate
Pseudoachondroplasia
- contact Restricted Growth Association under Growth
Pseudohurler Polydystrophy
Pseudoxanthoma Elasticum
Psoriasis
Psoriatic Arthropathy
Pudendal Neuralgia
Pulmonary Fibrosis
- contact British Lung Foundation under Lung
Purine Metabolic Diseases
Rape
Rare Chromosome Disorders
Refsum Disease
Reifenstein Syndrome
Relapsing Polychondritis
Rendu-Osler-Weber Syndrome
Repetitive Strain Injury
Restless Leg Syndrome
- contact Ekbom's Support Group under Ekbom
Restricted Growth
Retinoblastoma
Rett Syndrome
Reye's Syndrome
Rheumatism
Rickets
Riley-Day Syndrome
Road Death and Injury
Rosacea
- contact Acne Support Group under Acne
Russell-Silver Syndrome
- contact Silver-Russell Group c/o Child Growth Foundation under Growth
Sacral Agenesis
- Sacral Agenesis Support Group, Tel 023 8084 2661
Sadistic Abuse/Satanic Abuse
Saethre-Chotzen Syndrome
Saggital Synostosis
Salaam Seizures
Sanfillipo Syndrome
Sarcoidosis
Scabies
Scaphocephaly
Scheie Syndrome
Schilder's Disease
Scheurmann Disease
Schizophrenia
School Phobia
Scleroderma
- contact Raynaud's and Scleroderma Association under Raynauds's
Seasonal Affective Disorder
Second Arch Syndrome
Sed Tarda
Self Injury
Separation
Seriously Ill Children
Severs Disease
Sex and Disability
Sexaholism
Sexual Dysfunction
Sexually Transmitted Infections
Sheehan's Syndrome
Shingles and PHN
Shoplifting
- Crisis Counselling for Alleged Shoplifters, Tel 020 8954 8987
- Further Reading
Shprintzen Syndrome
Shy Bladder Syndrome
Sialic Acid Storage Disease
Silver-Russell Syndrome
- contact Silver-Russell Syndrome Support Group c/o Child Growth Foundation
under Growth
Sjögren's Syndrome
Skeletal Dysplasia
Skin Cancer
- contact MARC'S Line under Cancer
Skin Disorders
Skin Laser Treatment
- contact International Disfigurement Guidance Centre under Disfigurement
Sleeping Problems
Sleep Apnoea/Snoring
Sly Syndrome
Smith-Lemli Opitz Syndrome
Smith-Magenis Syndrome
Smoking/Nicotine Addiction
Solvent Abuse
Sotos Syndrome
- contact Sotos Syndrome Support Group c/o CaF under Family
Spasmodic Torticollis
Special Educational Needs
Speech Problems/Stammering
Spinal Bulbar Muscular Atrophy
Spinal Curvature
Spinal Injury and Tumour
Spinocerebellar Degeneration
- contact Ataxia Group
under Ataxia
Spondo-Epiphyseal Dysplasia Tarda
Steroid Problems/Steroid Abuse
Stepfamilies
- contact ParentLine Plus and Both Parents Forever under Parents
Stress
Strumpell-Lorraine Syndrome
Sudanophilic Leukodystrophy
Sudden Infant Death Syndrome
SUDEP (Sudden Unexpected Death in Epilepsy)
Suicide
- contact Shadow of Suicide c/o Compassionate Friends under Bereavement, for young suicide prevention see
HOPELine UK also under Bereavement. The
Samaritans can be found under Helplines
Supra-Bulbar Palsy
Syncopes
Syringomyelia
Systemic Lupus Erythmatous
- contact Lupus UK under Lupus
- also Arthritis Care under Arthritis
- also Raynaud's & Scleroderma Association under Raynaud's
Systemic Sclerosis
- contact Raynaud's & Scleroderma Association under Raynaud's
Takayasu's Arteritis
Talipes
Tar Syndrome
Tay-Sachs Disease
Tension Myalgia
- contact Fibromyalgia Association and Stiff UK under Fibromyalgia
Testes (Absence of/Torsion of)
Testicular Cancer
- contact Wessex Cancer Trust under Cancer
Testicular Feminisation Syndrome
Testosterone Deficiency
Thalidomide
Thromboasthenia
Thrombosis
Thyroid Eye Disease
Tinnitus
Toxic Shock Syndrome
Toxocariasis
Toxoplasmosis
Tracheostomies
Transplantation
Transverse Myelitis
Tranquilliser Addiction
Transexuals/Transgender/Gender Identity
Trigeminal Neuralgia
Tropical Spastic Paraparesis
Tuberous Sclerosis
Ulcerative Colitis
- contact National Association for Colitis and Crohn's Disease under Crohn's Disease
Urostomy
- contact Urostomy Association under Stoma
Usher Syndrome
Vaccination/Vaccine Damage
- JABS
- The Informed Parent
- Justice for Vaccine Damaged Children, Tel 0117 955 7818
- Victims of Vaccination Support Group, Tel 0121 243 7759
Valsalva Syncope
Varicose Veins
- contact Circulation Foundation (below)
Vascular Dementia
Vasculitis
Vaso Vagal Syndrome
Velo-Cardiofacial Syndrome
Vesico-Intestinal Fissure
Victims of Crime
Viral Fatigue Syndrome
Visceromegaly
Vitiligo
Von Gierke Disease
- contact Association for Glycogen Storage Disease under Glycogen
Von Hippel-Lindau Disease
Von Recklinghausen's Disease
Von Willebrand Disease
Waardenburg Syndrome
Walker Warburg Syndrome
Weaver Syndrome
- contact Sotos Syndrome Support Group c/o Child Growth Foundation under Growth
Werdig-Hoffman
White Breath-Holding Seizures
Williams Syndrome
Wilson's Disease
Winchester Syndrome
Wiskott-Aldrich Syndrome
Wolfram Syndrome
XO Syndrome
Xeroderma Pigmentosum
X-Linked Agammaglobulinaemia
XXY Syndrome
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